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New York


Contact Information
University at Buffalo
UB Institute for Person-Centered Care
201 C Wende Hall
3435 Main Street
Buffalo, NY 14214-8013
Davina Porock, PhD
716-829-2260
dporock@buffalo.edu


The Institute for Person-Centered Care (IPCC) at the University at Buffalo is a community-university cross-disciplinary research, education, practice development, and public awareness collaborative that supports and promotes sustainable systemic transformation of cultures within and between institutional and community care providers based on person-centered care (PCC) values. The focus of the IPCC is on vulnerable people who are experiencing chronic illness, frailty and physical or cognitive impairment. The Institute is national and international in scope, and aims to:

1.      Encourage and support scholarly research in the field of person-centered care, building the evidence base for effective strategies;

2.      Provide training in PCC and specialist topics for staff in long term care facilities, hospitals, community based entities providing healthcare services and consumers;

3.      Educate at the undergraduate and graduate levels, eventually building to interdisciplinary programs of study in aging/gerontology with a focus on PCC;

4.      Support PCC practice and culture change through leadership training and practice development.

5.      Provide context and balance that allows for a better public discourse on the delivery of services to frail and vulnerable people and support advocacy and public awareness efforts with accurate information and evidence;

Background

The IPCC grew from the collaboration between UB faculty and the Western New York Alliance for Person-Centered Care. The Alliance was a grass-roots collaborative of skilled nursing and assisted living facilities who were in the process of culture change and developing PCC in practice. Through support from the John R. Oishei Foundation, the Alliance provided training in PCC and culture change leadership for communal living environments across the eight counties of WNY.

The IPCC provides a sustainable infrastructure to support the work of the Alliance and expand its influence into the community, hospitals and any setting where vulnerable and frail people live. Existing collaborations with researchers in the United Kingdom and Australia as well as in the USA broaden the scope and impact of the IPCC beyond the region.

What is Person-Centered Care?

Person-centered care is a philosophy and approach to care which developed in nursing homes where residents, particularly those with dementia, were found to be disengaged with life, in low mood and often responding to care interactions with fear or aggression. The life experience for residents has been captured in the three descriptors: boredom, loneliness, and helplessness. Person-centered care is fundamentally about ensuring dignity for vulnerable and frail individuals wherever they live. Delivering person-centered care cannot only be the provision of high quality physical care but must also provide for the emotional and psychological needs of the person who is unable to satisfy these needs independently.

For more information, visit our web site at www.ubipcc.com.




Quality Care Community

Contact Information
Janice Dabney
Janice.dabney@labormanagementproject.org
Website:  www.qualitycarecommunity.org

History:

  • The QCC was created in the Collective Bargaining Agreement (CBA) between 1199SEIU & the Association of Voluntary Nursing Homes in 2002 in New York City.  Its original mission was to study nursing care practices with the goal of providing appropriate care for each resident.
  • November 2003: Held the first city-wide conference which attracted 300 staff from NYC voluntary nursing homes.
  • Annual conferences regularly involve 500+ participants.  Speakers have included; Bonnie Kantor, Mary Jane Koren, Larry Minnix, Steve Shields, Sue Misiorski, Joann Rader, Barbara Frank, Cathie Brady and other national leaders
  • Representatives from following organizations have attended and/or made presentations at QCC conferences: IPRO (NY State QIO), Long Term Care Community Coalition, Alzheimers Association, FRIA (Friends & Relatives of Institutionalized Aged), CIAD (Coalition of Institutionalized & Aged Disabled)
  • Nursing home residents & families have participated in QCC events
  • 2005 – Participated in St. Louis Accord, sponsored by CMS & Pioneer Network
  • 2005: Created a Field Guide ("Labor Management Approaches to Person-Centered Care") to present best practices in relation to: Organizational Models, Work Redesign, Team Development & Recruitment & Retention
  • 2006-08: Grant from the Commonwealth Fund entitled "A Labor-Management Partnership for Person-Centered Care in Nursing Homes: A Case Study", Christine Bishop, Ph.D. from Brandeis University was the Principle Investigator
  • Established website; created "Community" periodic newsletter to broadly share information about QCC activities.
  • In 2007-08, the "New Models of Person Centered Care" project supported pilot projects in 16 nursing homes, focusing on innovations related to dining, bathing and work design.
  • In 2009 – conducted a series of learning forums throughout NYC on "Pressure Ulcers".  A "Collective Bargaining Agreement Committee" was established to research new job titles, descriptions and work designs. This group will develop recommendations for changes to existing agreements.
  • In 2010 Learning Forums held throughout NYC on Person-Centered Dining – based on the Pioneer Webinar series.  Developed recommendations that were shared with CMS.  Additional educational sessions were conducted on the Green House model of care and Pain Management
  • In Dec. 2010 organized conference, "MDS 3 – Beyond the Form" facilitated by Barbara Frank and Cathie Brady.  CMS and NY State Department of Health officials provided additional information about the QIS survey process.
  • Have sent a delegation of union and management staff to every Pioneer Conference since 2002.  QCC facilities are regular workshop presenters at Pioneer conferences.  Have been a participating sponsor since 2008.
  • QCC members have presented at Leading Age national conference, ASA national conference, Pioneer Conference


Organizational Structure:

The QCC is guided by a Steering Committee that consists of equal numbers of Union and Management leaders.  The co-leaders are the President of the Continuing Care Leadership Coalition and the Nursing Home Division of 1199SEIU.  The Steering Committee meets 4 times per year, establishes overall goals and sub-committees to conduct activities.  QCC activities are open to all facilities that participate in the Collective Bargaining Agreement.  Staff support to the QCC is provided by the Labor Management Project, a department within the 1199SEIU Training & Employment Funds.

Funding:

Funding for QCC activities is established through the Collective Bargaining Agreement.  In 2006-08 we received a research grant from the Commonwealth Fund.

Current Activities:

  • In May 2011 launched our MDS 3 Learning Collaborative, with facilitation from B & F Consulting.
  • Conducted Learning Forums on Performance Improvement.
  • Participated in launch of national MDS 3 Learning Collaborative at Pioneer Conference (2 QCC facilities were featured presenters)
  • Discussions about impact on national Health Care Reform and NY State Medicaid Redesign Team recommendations on person-centered care.
  • QCC facilities participated in study on "Staff Turnover and Stability in New York Nursing Homes" (Nicholas Castle, Ph.D. – Principle Investigator); sponsored by Commonwealth Fund.